The 20 Best Neurofibromatosis Doctors Near Me in Kansas City, MO

Find the Top Neurofibromatosis Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 117 doctor with experience in Neurofibromatosis near Kansas City, MO. Of these, 106 are Experienced, 8 are Advanced, 2 are Elite and 1 are Distinguished.

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117 providers found
    Elite in Neurofibromatosis
    Elite in Neurofibromatosis

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
    Languages Spoken:
    English

    David Gutmann is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Gutmann is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Optic Glioma, Neurofibromatosis Type 1 (NF1), and Glioma.

    Elite in Neurofibromatosis
    Elite in Neurofibromatosis

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
    Experience:
    17+ years
    Languages Spoken:
    English

    Angela Hirbe is an Oncologist practicing medicine in Saint Louis, Missouri. She has been practicing medicine for over 17 years. Dr. Hirbe is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis Type 1 (NF1), and Adult Soft Tissue Sarcoma.

    Experienced in Neurofibromatosis
    Pediatric Neurology | Pediatrics
    Experienced in Neurofibromatosis
    Pediatric Neurology | Pediatrics
    2401 Gillham Rd, 
    Kansas City, MO 
    Languages Spoken:
    English

    Brian Aalbers is a Pediatric Neurologist and a Pediatrics provider practicing medicine in Kansas City, Missouri. Dr. Aalbers is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Periventricular Heterotopia, Cortical Dysplasia, Focal or Multifocal Malformations in Neuronal Migration, and Seizures.

    Learn about our expert tiers
    Distinguished in Neurofibromatosis
    Distinguished in Neurofibromatosis

    Curators Of The University Of Missouri

    1 Hospital Dr, 
    Columbia, MO 
    Languages Spoken:
    English

    Michael Chicoine is a Neurosurgery provider practicing medicine in Columbia, Missouri. Dr. Chicoine is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 70 other conditions, according to our data. His clinical expertise encompasses Meningioma, Pituitary Tumor, Brain Tumor, Endoscopic Transnasal Transsphenoidal Surgery, and Endovascular Embolization.

    Advanced in Neurofibromatosis
    Dermatology
    Advanced in Neurofibromatosis
    Dermatology
    1204 E State Highway 72, 
    Rolla, MO 
    Languages Spoken:
    English

    Karl Staser is a Dermatologist practicing medicine in Rolla, Missouri. Dr. Staser is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Neurocutaneous Melanosis, Epidermal Nevus, Neurofibromatosis, and Neurofibromatosis Type 1 (NF1).

    Advanced in Neurofibromatosis
    Neuroradiology
    Advanced in Neurofibromatosis
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Matthew Parsons is a Neuroradiologist practicing medicine in Saint Louis, Missouri. Dr. Parsons is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Stroke, Meningioma, Subarachnoid Hemorrhage, Pediatric Low-Grade Glioma (pLGG), and Bone Marrow Aspiration.

    Experienced in Neurofibromatosis
    Neuroradiology
    Experienced in Neurofibromatosis
    Neuroradiology

    Ssm Health St. Joseph-St. Charles

    300 1st Capitol Dr, 
    Saint Charles, MO 
    Languages Spoken:
    English

    Mrudula Penta is a Neuroradiologist practicing medicine in Saint Charles, Missouri. Dr. Penta is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Stroke, Radiation Induced Meningioma, Meningioma, and Cerebral Arteriovenous Malformation.

    Experienced in Neurofibromatosis
    Neuroradiology
    Experienced in Neurofibromatosis
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Michelle Miller is a Neuroradiologist practicing medicine in Saint Louis, Missouri. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Acute Lymphoblastic Leukemia (ALL), Subarachnoid Hemorrhage, Neurofibromatosis Type 2 (NF2), and Stroke.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis

    Washington University

    660 S Euclid Ave, 
    Saint Louis,, MO 
    Languages Spoken:
    English

    Frank Seghatol is a Cardiologist practicing medicine in Saint Louis,, Missouri. Dr. Seghatol is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Pulmonary Edema, Heart Failure, Aortic Regurgitation, Pediatric Myocarditis, and Cardiac Ablation.

    Experienced in Neurofibromatosis
    Neuroradiology
    Experienced in Neurofibromatosis
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Ali Mian is a Neuroradiologist practicing medicine in Saint Louis, Missouri. Dr. Mian is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Choroid Plexus Cyst, Hydrocephalus, Pediatric Low-Grade Glioma (pLGG), and Clouston Syndrome.

    Experienced in Neurofibromatosis
    Dermatology
    Experienced in Neurofibromatosis
    Dermatology

    Office

    8656 N Ambassador Dr, 
    Kansas City, MO 
    Languages Spoken:
    English

    Mark Cohen is a Dermatologist practicing medicine in Kansas City, Missouri. Dr. Cohen is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Basal Cell Skin Cancer, Universal Acquired Melanosis, Liver Spots, and Neurocutaneous Melanosis.

    Experienced in Neurofibromatosis
    Neuroradiology
    Experienced in Neurofibromatosis
    Neuroradiology

    St. Luke's Hospital

    232 S Woods Mill Rd, 
    Chesterfield, MO 
    Languages Spoken:
    English

    Hilary Orlowski is a Neuroradiologist practicing medicine in Chesterfield, Missouri. Dr. Orlowski is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Stroke, Invertebral Disc Disease, Herniated Disk, and Neurofibromatosis Type 2 (NF2).

    Experienced in Neurofibromatosis
    Radiology | Pediatric Radiology
    Experienced in Neurofibromatosis
    Radiology | Pediatric Radiology
    2401 Gillham Road, 
    Kansas City, MO 
    Experience:
    18+ years
    Languages Spoken:
    English

    Rachel Berkovich is a Radiologist and a Pediatric Radiologist practicing medicine in Kansas City, Missouri. She has been practicing medicine for over 18 years. Dr. Berkovich is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. Her clinical expertise encompasses Familial Porencephaly, Choroid Plexus Cyst, Arachnoid Cysts, and Cerebellum Agenesis Hydrocephaly. Dr. Berkovich is board certified in American Board Of Radiology (Pediatric) , American Board Of Radiology/Diagnostic Radiology , Drug Enforcement Administration , Missouri Dept Of Health/Narcotics&Dangerous Drugs , and Missouri State Board Of Registration.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis

    St. Louis Children's Hospital

    1 Childrens Pl, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Susan Bayliss is a Pediatrics provider practicing medicine in Saint Louis, Missouri. Dr. Bayliss is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Epidermal Nevus, Neurocutaneous Melanosis, Legius Syndrome, and Cardiofaciocutaneous Syndrome.

    Experienced in Neurofibromatosis
    Neuroradiology
    Experienced in Neurofibromatosis
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Manu Goyal is a Neuroradiologist practicing medicine in Saint Louis, Missouri. Dr. Goyal is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Hydrocephalus, Normal Pressure Hydrocephalus, Congenital Cardiovascular Shunt, Multiple Sclerosis (MS), and Thrombectomy.

    Experienced in Neurofibromatosis
    Neuroradiology
    Experienced in Neurofibromatosis
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Katie Vo is a Neuroradiologist practicing medicine in Saint Louis, Missouri. Dr. Vo is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Stroke, Subarachnoid Hemorrhage, Cerebral Arteriovenous Malformation, Bone Marrow Aspiration, and Embolectomy.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Jack Jennings is a Radiologist practicing medicine in Saint Louis, Missouri. Dr. Jennings is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Fractured Spine, Caffey Disease, Scoliosis, Bone Marrow Aspiration, and Vertebroplasty.

    Experienced in Neurofibromatosis
    Dermatology
    Experienced in Neurofibromatosis
    Dermatology
    969 N Mason Rd # 225, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Caroline Mann is a Dermatologist practicing medicine in Saint Louis, Missouri. Dr. Mann is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Neurocutaneous Melanosis, Epidermal Nevus, Graham-Little-Piccardi-Lassueur Syndrome, and Actinic Keratosis.

    Experienced in Neurofibromatosis
    Neuroradiology
    Experienced in Neurofibromatosis
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Joshua Shimony is a Neuroradiologist practicing medicine in Saint Louis, Missouri. Dr. Shimony is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Hydrocephalus, Dextrocardia, Dextrocardia with Situs Inversus, Chiari Malformation, and Posterior Fossa Decompression.

    Experienced in Neurofibromatosis
    Neuroradiology
    Experienced in Neurofibromatosis
    Neuroradiology

    Diagnostic Imaging Centers P.A.

    4801 Main St Ste 200, 
    Kansas City, MO 
    Experience:
    17+ years
    Languages Spoken:
    English

    Numukunda Darboe is a Neuroradiologist practicing medicine in Kansas City, Missouri. He has been practicing medicine for over 17 years. Dr. Darboe is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Chronic Rhinosinusitis with Nasal Polyps (CRSwNP), Tarlov Cysts, Scoliosis, and PEHO Syndrome.

    Showing 1-20 of 117

    Last Updated: 04/28/2026

    When should I see a Neurofibromatosis doctor near Kansas City, MO?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis doctor near Kansas City, MO?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis doctors near Kansas City, MO?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis doctors near Kansas City, MO?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis doctor near Kansas City, MO?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis doctor near Kansas City, MO?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis doctors near Kansas City, MO?

    Look for the filter feature on the left side of the Neurofibromatosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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